Cover

Introduction

Epilogue

Hunter Links &
Resources

page
navigation:

1 | 2 | 3 | 4 | 5

6 | 7 | 8 | 9

10 | 11 

it is with deepest love I dedicate this story to Ethan Orion Oberst; we will never forget your smile!

~ jude oberst ~

reprinted by kind permission of the author & the National MPS Society

back to Taryn's World About Switches!

• Australian MPS Society
• Austrian MPS Society
• Canadian MPS Society
• German MPS Society
• Italian MPS Society
• National MPS Society (US)
• Sociedade Brasileira de Mucopolissacaridoses (Brazil)
• Society for Mucopolysaccharide Diseases (UK)

Lysosomal Disease Organizations

• Lysosomal Diseases Australia
• Lysosomal Diseases New Zealand
• National Tay-Sachs & Allied Diseases Association
• Vaincre les Maladies Lysosomales

Lysosomal Disease Information

• Human Genetic Disease: A Layman's Approach
• Lysosomal Storage Diseases At a Glance

Umbrella Organizations

• Association of Genetic Support Australasia
• Canadian Organization for Rare Disorders
• The Genetic Alliance
• Eurordis
• National Organization for Rare Disorders